PMM2-CDG Resources and Support

“Seeing other families with similar issues helps you to not feel like you’re alone.”

– Caregiver of Trevor, a patient living with PMM2-CDG

Patient Advocacy and Support Organizations

CDG CARE is a non-for-profit organization formed to promote awareness and provide support to families affected by CDGs, including PMM2-CDG.

Explore the links below to connect with the community and see what resources CDG CARE has to offer.

Research & Clinical Trials

Finding a Supportive Community

Register with the CDG CARE Family Resource Network to connect with the broader CDG community

Visit:

or return to:

Navigating PMM2-CDG